Part Five – Disability Activism

Part Five (V)

Reclaiming social positions, places and spaces

Chapter 14:

Disability sport and social activism

Damian Haslett is a doctoral Researcher at Durham University, UK. His research focuses on the intersection of disability rights and disability sport. Damian is a full member of the Division of Sport, Exercise and Performance Psychology in the Psychological Society of Ireland, and he serves on executive committee of Irish Wheelchair Association Sport.

To learn more:

You can read about Damian Haslett’s work: http://www.researchgate.net/profile/Damian_Haslett

Read the article or watch the presentation about “Disabled athlete activism: motivators and barriers to participation in activism among athletes with disabilities in South Korea”: http://epapers.bham.ac.uk/3257/

Twitter: @DamianHaslett

Brett Smith is a Professor at Durham University, UK. Working with organisations like Disability Rights UK and Aspire, his research focuses on disability, sport and physical activity. Brett serves on seven journal editorial boards (e.g. Disability and Society), is Associate Editor for two journals, and is the President of the International Society for Qualitative Research in Sport and Exercise.

To learn more:

You can read about Brett Smith’s work online: http://www.dur.ac.uk/directory/profile/?id=18443

http://www.researchgate.net/profile/Brett_Smith4

Read one of his news articles on disabled athletes: http://theconversation.com/disabled-athletes-should-use-paralympic-spotlight-to-fight-discrimination-64938

Watch him present on physical activity and disability: http://www.youtube.com/watch?v=Wdj8eRHygpE

Twitter: @BrettSmithProf

Chapter 15:

Naples in the Hands: activism for aesthetic enjoyment

Ciro Pizzo is a researcher at University of Naples ‘Suor Orsola Benincasa’, where he teaches Sociology and Social Models of Disability. He’s co-Director of the DIE – Groupe de recherche/Laboratoire des terrains vagues au sujet de Désaffiliation, Incertitude, Exclusion and Member of the Executive Comittee of the CeRC ‘Centre for Governmentality and Disability Studies “Robert Castel” of Naples’ – ANED Centre for Italy. He’s member of the Editorial Board of Minority Reports and Cultural Disability Studies.

To learn more:

You can find out more on a personal web-page: http://www.researchgate.net/profile/Ciro_Pizzo

You can read ‘Minority Reports’ online: http://universitypress.unisob.na.it/ojs/index.php/minorityreports/index

Twitter: @ciropizzo

Carmela Pacelli graduated in Educational Sciences and Primary Education Sciences and is responsible for the University Service for the activities of students with disabilities (SAAD) at the University of Suor Orsola Benincasa in Naples Italy and a coordinator of the Naples in The Hands Network.

To learn more:

In Italian, Napoli tra le mani/Naples in the hands: http://www.unisob.na.it/napolitralemani/a003.htm?vr=3 and http://www.linkedin.com/pulse/la-rete-di-musei-napoli-tra-le-mani-carmela-pacelli?articleId=6267252592926031872#comments-6267252592926031872&trk=public_profile_article_view

SAAD: http://www.unisob.na.it/universita/saad/a002.htm?vr=1

and http://www.superando.it/2018/10/25/visite-in-lis-in-uno-splendido-palazzo-di-napoli/

Maria Grazia Gargiulo is Ph.D. in Environmental Education and Sustainable Development and Expert in Disability Pedagogy and Social Model of Disability at the Suor Orsola Benincasa University of Naples in Italy.

To learn more:

Read “Representing Disability: Activism and Agency in the Museum” : http://www.routledge.com/Re-Presenting-Disability-Activism-and-Agency-in-the-Museum/Sandell-Dodd-Garland-Thomson/p/book/9780415494731

Check out The People’s History Museum where exhibitions on disability activism are co-produced: http://phm.org.uk/exhibitions/nothing-about-us-without-us-2/

Read article about how museums need to do more than focus just on physical access: http://www.museumsassociation.org/museums-journal/news/08112012-speak-out-disabled-museum-visitors-employees-still-face-barriers

Chapter 16:

Pissed off!: disability activists fighting for toilet access in the UK

Charlotte Jones is a Postdoctoral Research Fellow at the University of Exeter’s Wellcome Centre for Cultures and Environments of Health. Her work responds to conversations within feminist theory, queer theory and critical disability studies. She was awarded her doctorate on intersex people’s experiences of relationships, intimacy and prejudice by the Department of Sociological Studies, University of Sheffield in 2017. Charlotte previously worked on sexual violence and disclosure in Higher Education settings, community activism and advocacy for HIV pre-exposure prophylaxis, and as Research Fellow on Around the Toilet, a project about the public toilet as a location of exclusion and belonging for queer, trans and disabled people.

To learn more:

You can find Charlotte Jones’ work online: http://exeter.academia.edu/CharlotteJones

Listen or read “School Toilets: Queer, disabled bodies and gendered lessons of embodiment”: http://www.tandfonline.com/doi/full/10.1080/09540253.2016.1270421

Twitter: @Charlotte_Sheff

Jen Slater works as a Reader in Disability Studies and Education at Sheffield Hallam University, UK. Their research focuses on issues of disability, gender and the body. They are also interested in critical explorations of developmental discourse and issues of access/accessibility. Their PhD research used critical disability studies perspectives to explore meanings that we attach to ‘youth’ and ‘adulthood’. From 2015-2018, they led a series of AHRC-funded arts-based projects collectively known as Around the Toilet. Around the Toilet explores the toilet as an embodied space of exclusion and belonging (aroundthetoilet.com). You can read more about their work on their academic blog at jenslater.wordpress.com.

To learn more:

The Around the Toilet Project: http://aroundthetoilet.wordpress.com/people/

Watch the animated film: http://aroundthetoilet.wordpress.com/the-toilet-animated-film/

Read or listen to “Troubling School Toilets”: http://www.tandfonline.com/doi/full/10.1080/01596306.2017.1316237

Read about Jen Slater’s work online: http://www.shu.ac.uk/about-us/our-people/staff-profiles/jenny-slater

Twitter: @jenslater_

Sam Cleasby is a writer, blogger and radio presenter from Sheffield and works for disability charity, Scope. She has a chronic illness and a permanent ileostomy and is passionate about raising awareness and supporting disabled people. She is a mum of three teenagers and can be found on her award-winning blog, So Bad Ass Me, breaking the taboos around poo and sharing her experiences of life with an ostomy bag.

To learn more:

Read Sam Cleasby’s blog “So Bad Ass”: http://www.sobadass.me/my-story/

Read an article about her work: http://www.bladderandbowel.org/news/sam-cleasby-bad-ass-queen-ibd-invisible-disability-body-positivity/

Twitter: @so_bad_ass

Gill Kemp’s career has spanned education, law and the media. She has been involved with various charities and campaigns and is the founder of Public Toilets UK. She is also a co-founder of the Toilet Consortium UK. While giving evidence on the effects of public toilets closures to Government committees, Gill also worked with various official organisations to produce booklets on topics such as reducing vandalism in toilets and access to facilities for lorry drivers. She has also written handouts on health issues that affect UK lorry drivers. Gill has several publications she was a participant in the innovative Around the Toilet project based in Sheffield.

To learn more:

The British Toilet Association: http://www.btaloos.co.uk/

Trucker’s Toilets: http://www.btaloos.co.uk/?page_id=469

Public Toilets Map UK : http://www.toiletmap.org.uk

Changing Toilets Map: http://www.uktoiletmap.org

Eleanor Lisney is a campaigner, founder member, public speaker and director of Sisters of Frida, a disabled women’s collective. She is an access advisor, an aspiring creative practitioner and co-founder/ director of Culture Access CIC, which is about supporting access (including to toilets and transport), bringing an inclusive edge intersectionally.

To learn more:

Sisters of Frida: http://www.sisofrida.org

Culture Access CIC: http://cultureaccess.co.uk/

Sarah Rennie is an accessibility and inclusion specialist, equality trainer and reformed solicitor. Her particular areas of interest are transport and toilets. She is a steering group member of Sisters of Frida CIC and former President of the Access Association. Sarah lives in Birmingham with no children or dogs.

To learn more:

Sisters of Frida: http://www.sisofrida.org

Access Association: http://www.accessassociation.co.uk/

Chapter 17:

Mobility-as-occupation: non-confrontational activism in Trinidad and Tobago

Sylette Henry-Buckmire has a PhD in Health and Rehabilitation Sciences, Disability Studies track from Stony Brook University. Her study is a feminist, ethnographic practice that takes a historicised look at disability formation, and is committed to disability, mobility and occupational justice. It creates a space to discover a deeper, more textured understanding of how people move and occupy with physical disabilities. Sylette’s research interests include disability studies, mobilities studies, occupational therapy, Caribbean studies, and feminist, postcolonial, and critical race theory.

To learn more:

You can read about Sylette Henry-Buckmire’s work: http://www.researchgate.net/profile/Sylette_Henry-Buckmire

You can read her PhD thesis: http://search.proquest.com/openview/41e3f845bf7452a654e075a1619d510e/1?pq-origsite=gscholar&cbl=18750&diss=y

National Policy in Trinidad and Tobago on disability: http://www.social.gov.tt/wp-content/uploads/2018/08/Revised-National-Policy-on-PWDs-July-2018.pdf